Items tagged 'haemophilia'

We are saddened by the passing of haemophilia community leader Ann Roberts on 23 March 2026.
Paediatric haemophilia nurses describe what they learned about transition from child to adult haemophilia care during a visit to an adult HTC.
Simoni and Javonte caught up to talk about growing up with a bleeding disorder, treatment, playing sport and why it's important to share your story.
On Rare Disease Day we strive for equity in social opportunities, healthcare and access to diagnosis and therapies for people with rare bleeding disorders.
Testing for haemophilia in women and girls is crucial as many are not yet diagnosed and registered with the national Bleeding Disorders Registry.
The 2025 Conference highlighted groundbreaking novel therapies for bleeding disorders and how teamwork can transform lives.
The 2025 Conference spotlighted women, ageing with haemophilia and communicating before medical procedures.
Professor Cedric Hermans spoke with HFA about new and emerging haemophilia therapies, women and girls, and the importance of diagnosis.
The session on women with bleeding disorders at the 2025 Conference explored a female-centric approach to treatment and care over the lifetime.
HFA has published haemophilia treatment fact sheets on clotting factor replacement therapy, bispecific antibody therapy, rebalancing therapies and gene therapy.

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